Saturday, 24 September 2011
I am now going through a relapse. I have tunnel vision, loss of sensation and strength in my right side and pain from my neck upwards but it really isn't bothering me. That is because I have the Lord with me and on my side, how awesome is that?
I am so privileged to have the Lord in my life and to be able to come to the Lord in prayer. Walking and talking with the Lord is truly marvelous! I don't do it enough and I wonder why, because when I am talking with the Lord, all things of this world fade away and become unimportant.
I have such a forgiving and loving Lord, I fail over and over again in so many aspects of my life and the Lord picks me up and guides me. Everything that happens in my life is what the Lord has allowed and it continually shapes me while I walk the Christian path in this world.
Thursday, 8 September 2011
Friday, 29 July 2011
My Mum died abroad whilst on holiday with my Dad a few weeks ago, it was sudden and unexpected.
I cannot explain the immediate feelings I had when the news was broken to me. But straight away I picked up my bible and sought scripture to comfort me.
The weeks that went by were filled with getting my Dad back home and then getting Mum repatriated. We were blessed that both went smoothly and as quickly as possible and the holiday company were brilliant in support and organising things.
I have two sisters and together we wept, sorted things out and supported one another. Our focus was to suport Dad and protect him if we could.
The funeral was this past Tuesday and it was hard but also made things feel final to me.
Many people all over the world were praying for my family and I, and I felt the presence of the Lord with me at all times even though at times I found it difficult to pray, read scripture and have quiet times with the Lord. The Lord completely understands how fragile I was and gave me strength I didn't think I had mentally and physically.
Below is something that was shared in our ladies meeting and I just love reading it.
I needed the quiet, so He drew me aside,
Into the shadows where we could confide:
Away from the bustle, where all the day long,
I hurried, and worried, when active and strong.
I needed the quiet, though at first I rebelled,
but gently, so gently my cross He upheld:
And whispered so sweetly of spiritual things,
though weakened in body,- my spirit took wings,
to heights never dreamed of when active and gay,
He loved me so greatly - He drew me away.
I needed the quiet, No prison my bed,
but a beautiful valley of blessing instead:
A place to grow richer, in Jesus to hide,
I needed the quiet - so He drew me aside.
I thank you for all you prayers and loving sentiments. Please continue to pray for me and my family as I am weak - but God is mighty!
Tuesday, 28 June 2011
MS NewsMS cure a step closer with new discovery
Researchers believe they may have found a 'missing link' in the treatment of multiple sclerosis (MS). Scientists say they have discovered a new molecule that could lead to a drug treatment to repair myelin, the fatty material that coats and insulates nerves. Damage to myelin can cause the symptoms of MS but there are currently no treatments to repair it.
The study, published in Nature Neuroscience, was carried out by scientists at the University of California, San Francisco, and the University of Cambridge, and funded by the MS societies of the US and UK.
The Independent- 27 June (Coverage also in The Times, The Telegraph, The Scotsman, The Herald, Press & Journal and The Sun)
Dr Doug Brown of the MS Society is quoted in several of the above pieces of coverage. Simon Gillespie was also interviewed by Sky News Radio, and Dr Robin Frankiln was on this morning's Today programme. Read more about the study on our website here.
Thursday, 9 June 2011
Thursday, 19 May 2011
Through the woodland hear the echo
Of the birds that sing all day
And at dusk, amongst the shadows,
See the fox and cubs at play;
Badgers from their setts appearing
As the darkness veils the glade:
See the glories of Creation
In the creatures God has made.
In the garden in the morning,
As the buds burst into flower,
Bees collect the precious nectar,
Toiling on from hour to hour.
Spiders spin their webs of silver,
Architects and builders too;
Butterflies clothed in their beauty,
Decked by God with every hue.
Wolves and bears, and lions and tigers
Live in lands beyond the seas,
But the God who made the rabbit
And the little mouse made these.
Elephants that pull their burdens,
Camels crossing desert sand;
All of these, for His good pleasure,
In His wisdom God has planned.
Fishes in the seas and waters,
Creatures from the ocean deep,
Shark and dolphin, seal and turtle,
Each their place in nature keep.
Mighty whales with spouting fountains,
Swimming out so far from land:
All are part of His Creation,
All were fashioned by His hand.
Witnesses of the Creator,
Formed by His divine decree;
By His word brought into being,
Simply He said, "Let there be".
Thus beholding God's Creation,
Let us give Him all the praise;
Worship Him in awe and Wonder,
Now and through eternal days.
I got this from a friends blog and I wanted to share it.
In the end my husband and I came to the descision that he needed to become my full time carer.
Not enough thought is given to people who care for others.
Its saves the government a lot of money for a start and it changes carers lives forever.
WE are blessed we have God in our lives and I am married to my best friend. Its not always easy for either of us but I am convinced it has made us closer!
We do need to stop and think about the carers, they are a lot of the time forgotten.
Friday, 6 May 2011
I could not even remember my own address and phone number the other day. I completely locked myself out of my email account by using the wrong password too many times. (thankfully my hubby fixed it for me). I have forgotten my PIN number for my debit card on occasions too. I seem to get stuck in mid conversation with people so often now.
My head feels fuzzy, like in a haze - it is quite upsetting and embarrassing.
It seems to come and go, like there is pothole in the road, sometimes you miss it sometimes you hit it. I will discuss this with my neurologist later this month.
I am truly thankful I can feel the presence of the Lord with me. He knows what I want to say even when I don't in prayer. I can just sit quietly with the Lord, saying nothing in my times of confusion.
How wonderful is that! I am so thankful I am the Lords.
I would really value your prayers at this time.
Wednesday, 27 April 2011
As I was having the treatment I started talking to another lady having it and it was so interesting.
She is taking a drug called LDN she had to get it privately described as her ( and my ) neurolgist will not perscribe it but will support you taking it.
She said it helps her sleep and prevents needing to use the toilet 10 times a night. She said she is feeling so much better in herself, partly to do with having a good nights sleep.
We exchanged email details and I am going to look further into it.
The pill that is hitting the headlines has got a license but has not been passed yet by the UK. My MS nurse thinks it could be another year or so before it is perscribed and warned me there maybe benefits in reducing relaspes by 60 % but its side effects are far higher that DMD 's.
here is a little imformation if your interested about LDN.
Low-dose naltrexone (LDN)
What is it?Naltrexone is licensed in the UK to help treat people who are addicted to opiates, such as heroin. Advocates of its use in MS suggest it should be given at a much lower dose than usual for the treatment of MS (10-50 times lower dose).
What does it do?Some research suggests that when naltrexone is given at low doses it triggers a prolonged up-regulation of endorphins. This increase may have an anti-inflammatory effect which could be beneficial in the treatment of MS. It has also been hypothesised that LDN may be able to reduce injury to the nervous system by decreasing the harmful effects of two types of chemicals called ‘free radicals’ and ‘excitotoxins’ (Med Hypotheses 2005; 64(4):721-4).
Would be very interested in anyone who has or is taking it and the pro's and cons of it.
Tuesday, 26 April 2011
If you want to join in go here and see how its going to be done.
My memory has definately been affected because of my MS but if you don't use it you will loose it is my motto.
Friday, 15 April 2011
I have ove the past four weeks had serious problems with my left eye. It optic neuritus and I have pain aswell as vision loss.
I have been in and out of eye clinics having the same tests over and over again.. Oh well atleast my eyes have had a good MOT!
Looks like I am going to have to have a 3 day course of steroids as vision and pain have got worse rather than better. Steroids do help greatly but I gave it a little more time than usual to see if I improved by myself, but alas it did not.
I am quite relaxed about it all, whats the point in getting upset and anxious about it. God has seen me through it all and continues to be with me.
Its all in Gods plan. :)
Tuesday, 12 April 2011
We enjoy keeping fish. We have one tropical tank that has one red clawed crab and a few neon tetra and one large cold water tank with four goldfish in we rescued from our pond during the winter. They would of died as the pond froze completely.(we had a very cold winter)
The crab I have nicknamed Bob, do not ask me why but it suits him. He doesn't do much and is a shy creature, but he kept still enough for me to take a picture.
Here he is.
He is quite small no more than the length of my little finger but he is quite handsome.
I find fish and the contents of a fish tank quite restful to watch.
Friday, 1 April 2011
I have been busy creating in my spare time, pop over to my other blog and have a peek if interested.
I am starting a painting journal, and see how my heAlth alters my art. Should be interesting to look back on.
Friday, 4 March 2011
I have never experienced such Joy and peace before. The Lord is so good! and I cannot put into words how thankful I am.
My exhaustion levels are at a all time high , my pain levels are high, my mobility is very limited but I am contented and at peace about it all.
Maybe it is acceptance about my situation. I have not given up I am just going with the tide rather than struggling and fighting against it all the time.
I still have lots of trials ahead of me but God is with me and knows all my needs.
How awesome is that?
A few verses that say it all
Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.
2 Thessalonians 3:16Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you.
Wednesday, 9 February 2011
I have several.
Job Chapter 23 verse 10
But He knows the way that I take;
When He has tested me, I shall come forth as gold
1 Chronicles 16:11
Seek the LORD and His strength; seek His face continually.
Our Church Motto text for this year is.
A man’s heart plans his way,
But the LORD directs his steps.
Another place I like to hide in is this Hymn
"My Hope is Built on Nothing Less"
by Edward Mote, 1797-1874
My hope is built on nothing less
Than Jesus’ blood and righteousness;
I dare not trust the sweetest frame,
But wholly lean on Jesus’ name.
When darkness veils His lovely face,
I rest on His unchanging grace;
In every high and stormy gale,
My anchor holds within the veil.
His oath, His covenant, His blood
Support me in the whelming flood;
When all around my soul gives way,
He then is all my hope and stay.
When He shall come with trumpet sound,
Oh, may I then in Him be found;
Dressed in His righteousness alone,
Faultless to stand before the throne.
On Christ, the solid Rock, I stand;
All other ground is sinking sand,
All other ground is sinking sand.
They all have a theme. Gods strength and guidance.
MS effects me mentally as well as physically and my strength fails me all the time but God never fails me nor forsakes me. He gives me peace and comfort throughout the most turbulant of times.
Having an Ark to take shelter in is so vital for me, do you have an ARK?