Wednesday, 27 April 2011

Started steroids

Yesterday was the beginning of a three day IV course of steroids for me. The cannula went in first time which so rarely happens...
As I was having the treatment I started talking to another lady having it and it was so interesting.
She is taking a drug called LDN she had to get it privately described as her ( and my ) neurolgist will not perscribe it but will support you taking it.
She said it helps her sleep and prevents needing to use the toilet 10 times a night. She said she is feeling so much better in herself, partly to do with having a good nights sleep.
We exchanged email details and I am going to look further into it.
The pill that is hitting the headlines has got a license but has not been passed yet by the UK. My MS nurse thinks it could be another year or so before it is perscribed and warned me there maybe benefits in reducing relaspes by 60 % but its side effects are far higher that DMD 's.

here is a little imformation if your interested about LDN.

Low-dose naltrexone (LDN)

What is it?

Naltrexone is licensed in the UK to help treat people who are addicted to opiates, such as heroin. Advocates of its use in MS suggest it should be given at a much lower dose than usual for the treatment of MS (10-50 times lower dose).

What does it do?

Some research suggests that when naltrexone is given at low doses it triggers a prolonged up-regulation of endorphins. This increase may have an anti-inflammatory effect which could be beneficial in the treatment of MS. It has also been hypothesised that LDN may be able to reduce injury to the nervous system by decreasing the harmful effects of two types of chemicals called ‘free radicals’ and ‘excitotoxins’ (Med Hypotheses 2005; 64(4):721-4).

Would be very interested in anyone who has or is taking it and the pro's and cons of it.

Tuesday, 26 April 2011

Memorise Philippians in a year.

I have joined in with a few other people to memorise philippians in a year. Great challenge!

If you want to join in go here and see how its going to be done.

My memory has definately been affected because of my MS but if you don't use it you will loose it is my motto.

Friday, 15 April 2011

Update on health.

Well I have not written much about my health recently , so I thought I would update you all.
I have ove the past four weeks had serious problems with my left eye. It optic neuritus and I have pain aswell as vision loss.
I have been in and out of eye clinics having the same tests over and over again.. Oh well atleast my eyes have had a good MOT!
Looks like I am going to have to have a 3 day course of steroids as vision and pain have got worse rather than better. Steroids do help greatly but I gave it a little more time than usual to see if I improved by myself, but alas it did not.

I am quite relaxed about it all, whats the point in getting upset and anxious about it. God has seen me through it all and continues to be with me.
Its all in Gods plan. :)

Tuesday, 12 April 2011

Meet Bob the red clawed crab.

The wonders of Gods creation never ceases to amaze me.

We enjoy keeping fish. We have one tropical tank that has one red clawed crab and a few neon tetra and one large cold water tank with four goldfish in we rescued from our pond during the winter. They would of died as the pond froze completely.(we had a very cold winter)
The crab I have nicknamed Bob, do not ask me why but it suits him. He doesn't do much and is a shy creature, but he kept still enough for me to take a picture.

Here he is.

He is quite small no more than the length of my little finger but he is quite handsome.
I find fish and the contents of a fish tank quite restful to watch.

Friday, 1 April 2011

Quiet here but pop by my other blog.

I have been very quiet on this blog, but I am still around.
I have been busy creating in my spare time, pop over to my other blog and have a peek if interested.

I am starting a painting journal, and see how my heAlth alters my art. Should be interesting to look back on.