Started steroids

Yesterday was the beginning of a three day IV course of steroids for me. The cannula went in first time which so rarely happens...
As I was having the treatment I started talking to another lady having it and it was so interesting.
She is taking a drug called LDN she had to get it privately described as her ( and my ) neurolgist will not perscribe it but will support you taking it.
She said it helps her sleep and prevents needing to use the toilet 10 times a night. She said she is feeling so much better in herself, partly to do with having a good nights sleep.
We exchanged email details and I am going to look further into it.
The pill that is hitting the headlines has got a license but has not been passed yet by the UK. My MS nurse thinks it could be another year or so before it is perscribed and warned me there maybe benefits in reducing relaspes by 60 % but its side effects are far higher that DMD 's.

here is a little imformation if your interested about LDN.

Low-dose naltrexone (LDN)

What is it?

Naltrexone is licensed in the UK to help treat people who are addicted to opiates, such as heroin. Advocates of its use in MS suggest it should be given at a much lower dose than usual for the treatment of MS (10-50 times lower dose).

What does it do?

Some research suggests that when naltrexone is given at low doses it triggers a prolonged up-regulation of endorphins. This increase may have an anti-inflammatory effect which could be beneficial in the treatment of MS. It has also been hypothesised that LDN may be able to reduce injury to the nervous system by decreasing the harmful effects of two types of chemicals called ‘free radicals’ and ‘excitotoxins’ (Med Hypotheses 2005; 64(4):721-4).


Would be very interested in anyone who has or is taking it and the pro's and cons of it.

Memorise Philippians in a year.

I have joined in with a few other people to memorise philippians in a year. Great challenge!

If you want to join in go here and see how its going to be done.

My memory has definately been affected because of my MS but if you don't use it you will loose it is my motto.

Update on health.

Well I have not written much about my health recently , so I thought I would update you all.
I have ove the past four weeks had serious problems with my left eye. It optic neuritus and I have pain aswell as vision loss.
I have been in and out of eye clinics having the same tests over and over again.. Oh well atleast my eyes have had a good MOT!
Looks like I am going to have to have a 3 day course of steroids as vision and pain have got worse rather than better. Steroids do help greatly but I gave it a little more time than usual to see if I improved by myself, but alas it did not.

I am quite relaxed about it all, whats the point in getting upset and anxious about it. God has seen me through it all and continues to be with me.
Its all in Gods plan. :)

Meet Bob the red clawed crab.

The wonders of Gods creation never ceases to amaze me.

We enjoy keeping fish. We have one tropical tank that has one red clawed crab and a few neon tetra and one large cold water tank with four goldfish in we rescued from our pond during the winter. They would of died as the pond froze completely.(we had a very cold winter)
The crab I have nicknamed Bob, do not ask me why but it suits him. He doesn't do much and is a shy creature, but he kept still enough for me to take a picture.

Here he is.

He is quite small no more than the length of my little finger but he is quite handsome.
I find fish and the contents of a fish tank quite restful to watch.

Quiet here but pop by my other blog.

I have been very quiet on this blog, but I am still around.
I have been busy creating in my spare time, pop over to my other blog and have a peek if interested.

I am starting a painting journal, and see how my heAlth alters my art. Should be interesting to look back on.

Filled with Joy and peace.

I am still not well , I am unsure if I will return to a better state of health, but this has been such a positive experience for me.

I have never experienced such Joy and peace before. The Lord is so good! and I cannot put into words how thankful I am.

My exhaustion levels are at a all time high , my pain levels are high, my mobility is very limited but I am contented and at peace about it all.

Maybe it is acceptance about my situation. I have not given up I am just going with the tide rather than struggling and fighting against it all the time.
I still have lots of trials ahead of me but God is with me and knows all my needs.
How awesome is that?

A few verses that say it all

John 14:27

Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.

2 Thessalonians 3:16

Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you.

My Ark

A while back we had a visiting preacher. He covered many things but one thing that stuck in my mind is that he asked if we had an ARK that we can shelter in when life is stormy. By 'Ark', he meant favourite Scriptures.

I have several.

Job Chapter 23 verse 10
But He knows the way that I take;
When He has tested me, I shall come forth as gold


1 Chronicles 16:11
Seek the LORD and His strength; seek His face continually.

Our Church Motto text for this year is.

Proverbs 16:9
A man’s heart plans his way,
But the LORD directs his steps.


Another place I like to hide in is this Hymn

"My Hope is Built on Nothing Less"
by Edward Mote, 1797-1874

My hope is built on nothing less
Than Jesus’ blood and righteousness;
I dare not trust the sweetest frame,
But wholly lean on Jesus’ name.

When darkness veils His lovely face,
I rest on His unchanging grace;
In every high and stormy gale,
My anchor holds within the veil.

His oath, His covenant, His blood
Support me in the whelming flood;
When all around my soul gives way,
He then is all my hope and stay.

When He shall come with trumpet sound,
Oh, may I then in Him be found;
Dressed in His righteousness alone,
Faultless to stand before the throne.

Refrain:
On Christ, the solid Rock, I stand;
All other ground is sinking sand,
All other ground is sinking sand.

They all have a theme. Gods strength and guidance.

MS effects me mentally as well as physically and my strength fails me all the time but God never fails me nor forsakes me. He gives me peace and comfort throughout the most turbulant of times.

Having an Ark to take shelter in is so vital for me, do you have an ARK?